And recently bv gels just stopped working.). I feel that someone should gather together everyone's successful vulvodynia stories on a website so that others can read our stories and discover what the cause is for them and find a cure. and Privacy Policy and steps will be taken to remove posts identified Do, I tried everything she suggested and more (low oxalate diet, suppliments, saginil gel) and found myself gradually getting better so I continued with everything. You have to remember that I'm no doctor, so I can only give my best guess on this. Registered number: 10004395 Registered office: Fulford Grange, Micklefield Lane, Rawdon, Leeds, LS19 6BA. The nerves have become hyperactive and hypersensitive due to trauma which can be chemical or physical in source or due to infection. After viewing product detail pages, look here to find an easy way to navigate back to pages you are interested in. However, she did also say that I needed to get up to 50-70mg amitriptyline a day. No,mi spiaceio sono un esperta di candida come molte ragazze quine ho sofferto per piu di un anno e mezzo di seguito in maniera grave,ma non ho mai sentito di questo prodotto..io ne sono uscita definitivamente,da piu di 2 anni senza nemmeno una ricaduta usando l omeopatia.. 3 -Mi piace It feels a million times better than last week. i hope this helps. It didnt bother me that I didnt know what was and wasnt working, all that mattered was that I was getting better. Thank you for sharing your experience; and its so good to hear of a good doctor and a positive experience. By that time I had used the steroid cream for as long as is recommended and had stopped it (long term use not recommended). i also have over the years had attacks in times of extreme stress . There is a suppository that combines the two - i can't give the name because my message then gets moderated- I pop one of those in when I go to bed at night. You can still see all customer reviews for the product. I am sure that stress is a contributory factor - I was very stressed when I got the persistent and recurring thrush which turned into vulvodynia. Posted 5 years ago, 10 users are following. La spiegazione dello spotting?Aspecifica significa senza batteri, puo' darsi che la flogosi crea spotting nn so. They are indeed very different and probably needs to be separated but so far just finding out the name vulvadynia has helped me find SO much information. If anything, my sexual desires are stronger than my hubbys and he doesnt give me enough!!! Stick with the amitriptyline, it will help with pain and sleeping. You are so right. My breakthrough came about when I had a bout of gastroenteritis and couldn't eat for about four days. Aufeminin, titolare del trattamento, raccoglie queste informazioni in modo da poterti inviare comunicazioni commerciali personalizzate, soggette ai tuoi interessi. If this was a male illness you bet it would have been cured ages ago. So I slathered it on and it was delicious, enough for me to have seconds. This does not affect your statutory rights. Vulvodynia literally means vulvar pain and is a condition of the nerves in that area. jsdchtml3('aalc =ssp-fa"sona-t rews-fatsopa-wsnot-regga elb-fof-nturfa m-ntb-rof--murpamifa yrr-ylpeir-c thgnotcenesUdeOsr"ylnh ferof"=urcamoitsnanew7r36024"51 apsalc nssca"=-noitrap"tneRpsiidnosnap a', 'af_jsencrypt_30604'), Vedi altro I gradually reintroduced foods over the next week, and found that the symptoms slammed back about one hour after I ate some potato. i saw the dermatologist and she told me all the things that she had found worked to get rid of the pain, but nerve pain is difficult to get rid of so she suggested I try them all and stick at it. But of course the vagina and vulvar have the most mucous membranes and I got the most pain there. I want to say that since I posted 3 days ago I am feeling ABSOLUTELY PERFECT! And I never took it seriously. If users want this information please use the Private Message service to request the details. I wonder if this is who you have seen? It seems that as I grew older I could no longer de-toxify any of this family of foods, and by the time I reached menopause the problem had grown chronic. Having said all that, although your symptoms seem very similar, the location of your pain doesn't seem right for vulvodynia which is not usually internal, it it external in the vulva area - mine was the classic horseshoe shape pain area to the posterior of the vaginal opening (the forchette skin and the perineum). Since then have been having pelvic physio and acupuncture which has helped a lot. not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515128 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"1285 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1ExIDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emageM"ah832n951s71apnnapssnapaps n iddvvi', 'af_jsencrypt_30612'). You also need to get drugs that work on the nerve from the inside - amitriptyline. Slowly but surely its reducing all the symptoms of vulvodynia. Hope these help someone. ciao a tutte, volevo chiedervi di questo prodotto. Seeing a new doctor tomorrow will have a lot of questions. I don't want it to come back. I had to comment on you mentioning the inflammation in your eyes, scalp and face. Please make sure that you've entered a valid question. I probably have subconscious thoughts like virginity is the nice honourable thing for a woman and premarital sex is bad. Dear Suki girl. You are a star..many thanks for all the info. Read honest and unbiased product reviews from our users. These slowly worked for a while and made me comfortable enough to have a long overdue smear test. BUT it had chilli, paprika, potato thickener, and red and green capsicum! But for me it is working. She also told me that it is worth just trying everything. Notes on Is it possible I have Pudendal Neuralgia or Vulvodynia, https://patient.info/forums/discuss/is-it-possible-i-have-pudendal-neuralgia-or-vulvodynia-592838. Ill continue to use till the tube runs out. Ill continue to use till the tube runs out. I have just started using Dermol 500 lotion. I used to be unable to sleep due to the pain, and forget having sex. Upgrade to Patient Pro Medical Professional? Again, shame it takes so long to find out what food you are intolerant to. respect of any healthcare matters. Urinating didn't bother me, so I don't think Solanine gets excreted in the urine. We want the forums to be a useful resource for our users but it is important to remember that the forums are During that time my vulvadynia eased, until by the third day the symptoms had entirely disappeared. However, I believe that it was the alternative therapies (acupuncture, manual desensitisation, etc) that actually cured me. I really like that it just feels like a neutral gel. Basically, the family of plants that make up the Solanaceae have four main alkaloids that are all toxic to a various extent. No tomatoes, as promised. you have to walk somewhere just a bit to far to irritate those nerves. Best way to describe is I feel like I am wearing an underwear made out of wool, so it scratches my skin, makes it burn, etc. I am not made out of money! Always read labels and instructions before using any product. Jury is still out on that one. Best of luck! I used diprobase cream. Tobacco is also one of this group, and although I don't smoke, I get return of the itch if I spend time in a place, such as a club, where tobacco is smoked. You should not rely on such information, and it is not a substitute for advice from a medical professional. Some people find that after a few days it clears the pain completely, some find it doesn't nothing; i was somewhere in between and it reduced the pain just enough so I could bear it. All of these plants are closely related to the Deadly Nightshade, or Belladonna plant. I've used many things and they usually just cover up symptoms and not fix the underlying problem so it just happens over and over again. I have done a cleanse 3 months ago which didn't seem to help, and now I think it's because of the nightshades and some high oxalate greens I have been eating since then. I can't say if this helped my vestibulodynia or not, since the burning disappeared overnight the day before this arrived in the post (it has since come back but very mild, for a short period of time, then disappeared again). GPs dismiss my diet related inquiries so it's hard to design a diet on my own. Diet: I stopped eating tomatoes and all the other nightshades. I have had many uti's in the last year and a half. This helped tremendously and resolved my issues completely. Poi ho letto sul forum e poi sul foglietto illustrativo che per uso topico. I've also known of one child who used to get horrible eczema. It is mainly about vaginismus, but the exercises apply to vulvodynia too - just don't do them sitting on a juggling ball (ouch) do them standing up first, then lying down, as it advises in the book. Alos you you need to change your lifestyle. At times I felt like I just wanted all the skin in that area to be cut away. Posted On rare occasions Dermol doesn't work and I use Intrafresh pessaries overnight. When he had pneumonia and had no strength for sex for a long time his GP didnt say your wife must be very patient!! Find helpful customer reviews and review ratings for Saginil Gel 30ml at Amazon.com. Ma lo spotting premestruale lo hai sempre avuto? After many weeks of the burning pain I was diagnosed by a consultant gynochologist. : euroclorin (spero che sia il nome esatto)l'avete mai usato? Apparently the amitriptyline and the acupuncture work well together to dampen down those hyperactive and oversensitive nerves. I had the smear test and the pain came back full force - back to square 1. I have developed super hypersensitive skin in the area I presume due to lots of thrush treatments over the years - it took a lot of courage for me to try this gel but did after reading it was helpful for others. And then take pills for the rest of my life. Sto per comprareCiao! Scusa le domande ma cerco di capire il nesso con il saginil . Now in addition to vag pain have anal pain. But it has a lot of additives and smells of flowers. (I used to use flora balancing bv gels almost constantly, acti gel, flora plus and boots brand stuff etc, they used to burn when I'd first put it on, and had other problems with them, but it was okay and that's why I lived with this curse for years, because it was 'okay'. Very similar feeling of soreness and irritation to vulvodynia. To my friends credit, she didn't realize, she just assumed that tomato was the only one I had a problem with. Please make sure that you are posting in the form of a question. Customer Reviews, including Product Star Ratings, help customers to learn more about the product and decide whether it is the right product for them.Learn more how customers reviews work on Amazon. It's so upsetting how long it takes to try things, with no definite cure on the horizon. Il principio attivo del saginil serve a calmare la mucosa irritata inibendo una risposta immunitaria eccessiva , in genere con bruciori o calore . I don't know if my problem can't be called vd if it is related to dermatology rather than nerve system. I did the manual desensitisation - this is where you stroke yourself very lightly in the painful area, using non-irritating lubricant (I used oil based lube by yes, or coconut oil), just once the first day. I feel like my life is over. I tried the steroid cream again, but that really stung me. When I had a horrendous flare up last week I had been eating loads of tomatoes and peppers. It also shows we can reintroduce some foods back into our diet after giving our immune system a break. Solanine is the one I'm sensitive to, but they are all to some extent toxic. I have to stay away from night shade vegetables, dairy, gluten, eggs and beans. Third parties use cookies for their purposes of displaying and measuring personalised ads, generating audience insights, and developing and improving products. My first post has been deleted so must try harder not to mention products! The key is to be persistent, try everything, gradually build things up, stick with what works, be determined, don't give in. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413945588 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024134-5"5889 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez5Q1gDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emaasi"eb11_l246283psnanapsnapsps na dviidv', 'af_jsencrypt_30623'), Mi piace Here are some things I'd like to share in case it helps anyone else out there: I kept saying 'my' vulvodynia because everyone seems to have different issues, I believe mine is a dermatological issue since the creams help so much but these might not help everyone else. It leaves no residue, doesn't go flaky or anything- my partner or I would never know if I'd applied it or not. First of all, while you are curing yourself, you need some immediate relief so that at least you can function from day to day. 50ml Extender Cream for Men,Make Enhancement Cream,Enlargement Private Part Increases Energy Mood and Endurance,Larger and Longer For Male, PowerLocus Bluetooth Headphones Over Ear, Foldable Wireless Headphones, Hi-Fi Stereo Headphone with Deep Bass, Micro SD/TF, FM Radio & Wired mode, Built-in Microphones, Soft Earmuffs for Phone/PC, 1996-2023, Amazon.com, Inc. or its affiliates. But I had no other symptoms. I should try to find a different dermatologist but I am so fed up (also broke at this point). I am also doing a candida diet, but not super strictly. It was eventually traced (thanks to my telling his mother my suspicions) to a solanine sensitivity to tomatoes. when I was saying it hurts so I can't have sex with him a lot. Per saperne di pi sulla gestione dei tuoi dati ed esercitare i tuoi diritti, puoi consultare l'informativa sulla privacy. Amazon assumes no liability for inaccuracies or for missing or outdated information. Recently I have gone completely dry - my GP thinks my ovaries have finally packed in. She said she had many women who just got fed up with how long it was taking and just went for a long walk / bike ride / horse ride or had sex and put themselves back at square one again. Also, I know what you mean about a horrid flare up. Poi ho perdite scure 2-3 giorni prima della mestruazione. Glad you found solutions for yourself. We also use these cookies to understand how customers use our services (for example, by measuring site visits) so we can make improvements. I think they sell them for people with piles. I also washed my clothes in scent free, kind-to-skin laundry detergent and conditioner. Good luck with the Estrace. He works out of Monmouth Medicsl. I just wanted to share an update on my experiments. Use of the forums is subject to our Terms of Use It is silly because I realise we're endorsing a product, but there is only one such suppository and women with vaginal atrophy should know about it. Not sure if has been caused by a body wash used fifteen months ago. Regardless, I've been using it (mostly) twice a day since January 16th. But the douchiest moment was when she said 'won't your boyfriend get tired with you?' jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515464 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"4645 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1E0YDNalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emares"ne11_a261492psnanapsnapsps na dviidv', 'af_jsencrypt_30608'). I really ran out of my respect for doctors and the whole medical industry because of this type of behaviour. I pushed and saw another doc, who sadly has left and has left my practice with hardly any decent straight female g.ps left, I explained i was given eternal cream, (g.ps are fond of prescribing this, as it solves their problems.